List of Partners vendors. Behavioral variant frontotemporal dementia , also known as Pick's disease, is one of the several types of frontotemporal dementia. Frontotemporal dementia affects between 50,, people in the United States.
Here are a few. Okay, that's not true, but it can feel like it. Relatively few people are familiar with Pick's disease as compared to Alzheimer's disease.
This doesn't mean that coping with one type of dementia is easier or more difficult than any other, but it can cause some different challenges since you may need to educate others on why personality or behavior changes have occurred.
Sometimes, this can take extra energy when you're already feeling depleted. Personality and behavior changes , as well as impaired executive functioning , are the most common symptoms in early Pick's disease. These changes can cause hurt feelings, frustration, isolation, and broken relationships. Due to the effects of Pick's disease, those who suffer from the disease may lose the ability to feel emotions.
Some research has found that people with Pick's disease often can correctly identify whether the emotion displayed by someone else is positive or negative, but they may not be able to feel the emotion themselves.
This can make it very difficult for family and friends, and in some cases, it can push away the very people who are needed and could be helpful. This may be especially true for cases of Pick's disease who are diagnosed later, as the cause of those changes hasn't been identified yet. Criminal activity is more common in behavioral variant frontotemporal dementia due to the significant impairment in judgment , executive functioning, emotions, and behavior.
Common issues include inappropriate sexual behavior, urinating in public, stealing, trespassing and not following traffic rules. Compared to more familiar diseases, there are fewer physicians who are experts in Pick's disease and less community support for those with the disease and their loved ones.
If facility care is needed, securing placement may be difficult due to the behavior concerns in Pick's disease. Because the symptoms of Pick's disease typically don't include memory changes until later, the behaviors and emotional changes may initially be thought of as selfish, rude, or out of character.
The cardinal features are circumscribed cortical atrophy most often affecting the frontal and temporal poles and argyrophilic, round intraneuronal inclusions Pick bodies. Clinical manifestations reflect the distribution of cortical degeneration, and personality deterioration and memory deficits are often more severe than visuospatial and apraxic disorders that are common in Alzheimer's disease, but clinical overlap with other non-Alzheimer degenerative disorders is increasingly recognized.
Neuronal loss and degeneration are usually maximal in the limbic system, including hippocampus, entorhinal cortex and amygdala. Numerous Pick bodies are often present in the dentate fascia of the hippocampus. Less specific features include leukoencephalopathy and ballooned cortical neurons Pick cells. Family counseling can help the person cope with the changes needed for home care.
People with FTD and their family may need to seek legal advice early in the course of the disorder. Advance care directive, power of attorney, and other legal actions can make it easier to make decisions regarding the care of the person with FTD. You can ease the stress of FTD by joining a support group. Sharing with others who have common experiences and problems can help you not feel alone.
More information and support for people with FTD and their families can be found at:. The Association for Frontotemporal Degeneration -- www. The disorder quickly and steadily becomes worse. The person becomes totally disabled early in the course of the disease.
FTD commonly causes death within 8 to 10 years, usually from infection, or sometimes because body systems fail. Frontotemporal dementia. PMID: pubmed. Peterson R, Graff-Radford J. Alzheimer disease and other dementias. Bradley's Neurology in Clinical Practice. Philadelphia, PA: Elsevier; chap URAC's accreditation program is the first of its kind, requiring compliance with 53 standards of quality and accountability, verified by independent audit.
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